Hi I am new here

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Here is just a brief history. Have been self cathertising for almost twenty years due to bladder not emptying completely. Had no problems until 2014 kept getting urine infections. Then I started having problems with catheters encountering trouble with not being able to insert catheter to get residue urine out. Had cystscopy done and my urether had narrowed that much they had problems with inserting scope had to have a urethal stretch done in outpatients department since then have had problems self cathetertising. In 2015 I had to have a CT scan which showed hydronephonosis of both kidneys and a small cyst on my right kidney. In July of last year was admitted to hospital with severe kidney infection. Had to have a indwelling catheter fitted because at the time could not wee only had removed catheter in December 2016 and recently just had a urethal dialation and urethal stricture removed by laser. But they also found squamas metaplasia which could be due to infection inflammation or it could be pre cancerous cells got to wait until June to find out because urologist wants things to settle down before they decide to do a biopsy.

 

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Hello and welcome

 

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Thank you for the welcome

 

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Hello, that is quite the path you've been going through. Hope they figure things out for you and keep in touch on here, it's nice to hear others stories and know we aren't alone.

 

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Wow have you been through a lot.

I kind of understand what you are going through with all the infections. I too have developed a serious problem with infections, in fact I've been septic 4 times in the last 18 months!

We don't know why but I'm sure that they've told you that this now becomes life and death, have to recognize the 1st symptoms regardless how vague they are and get on antibiotics.

Are they considering putting an indwelling catheter, every time you have to catheterization yourself you're introducing infection. I'm sure that you are more than aware of all this, I just thought I'd let you know that you aren't alone, although I'm lucky not to be bad as you are!

You must be extremely anxious about your problems, hopefully someone with more experience than myself will respond.
Welcome and good luck, Susan

 

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Thanks for the welcome I am trying to avoid another indwelling catheter at the moment because they are higher risk of infection than doing self cathetising the less I need to self cathetise the better but at the moment I am having to self cathetise more because of the amount of residual urine left after normal wee. So the long and short of it is if I don't self cathetise risk of infection and if I do risk of infection can't win either way I try to keep on top of things but just lately I have not been getting the usaul signs of urine infection that could be down to the steroids I am on for polymyalgia rheumatica.