Good doctors visit.

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Earlier today I finally met with my Sugon again. It was a good appointment and he is happy with where I am in recovery.

I am also a lot happier where I am now and have started to accept that this is my life now.

A bit ago I had a few people here rightly asking why I was posting about things not incontinences related, well again I will say that the big part of this time in my life is that my mental health is a lot better.

I still have things I have to do, I see a CNP with GI next week and I am going to get some meds to deal with constipation knowing that my bowel incontinence will go up but it is life. I can change my diaper but I cannot change what life has dealt me so I am going to live as best as I can.

My surgeon is having me bring up some life upkeep stuff with PCP next month but that is it. GI will give me meds and if I need anything else I just have to go ask.

 

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It sounds like things are getting worked out. I hope I am reading this right.

 

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What a long journdy you have been on.
I am so glad you are feeling at peace with a very unpleasant side effect of a body that doesnt want to cooperate but the main thing is if you can live realtively pain free, absorbing nutrition and at inner peace then you are WINNING.
The people who were critical of your posts did not start your journey on the forum at the same time and so unaware how hard the path has been from Florida to pursue a job up north and seek better quality medical care for a condition thst would be invredibly hard on ones wellbeing. The forum
is here for keeping us afloat and im glad you have shared.

 

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@Maymay941

I forgot to mention that I did ask my surgeon about the thing my brother has. I do not have it but I have a few things to bring up to my PCP due to my condition and stuff that needs to be addressed for the future as I age.

The bottom line is that my stomach muscles from just above my belly button down into my pelvis do not work and he agrees with my worry that one day I may no longer be able to hold myself up with just my back muscles without support in that area so I have to talk to PCP about a few ideas moving forward in life so I can save my back as much as possible. Might be as simple as an over-the-counter back brace, he thinks for now.

Also. We talked a bit about everything and getting to where I am now. I cannot go back to what was before leaving Florida for what I thought was going to be a better life. It is easy to get into a place where I say... "Had I not done that crazy physical job for X months I would not be dealing with this." The truth is that there was a lot of stuff between the fall of 2018 and now that went very wrong and things are just getting to a somewhat acceptable place.

I have only shared 1/4 of the reality that was life due to way too much TMI with how bad my body was/is.

I will say it like this that will leave out the nasty. I went from Florida working selling Phones making $2,000 a month on good months to getting sick the first time in November 2018 to only clearing $900 a month due to no sales and bad hours. Got sick again. Had surgery in February 2019. Was told I would be good after that.

Came to Pa. for a family reunion after not being able to go back to work as they demanded me to.

Then just four months after making more money than I ever have in life, my world crashed down. I went from going to the bathroom a few times a night at work to being like a toddler who just started potty training. Work had security and in just two weeks everyone I worked with knew I was wearing a diaper at work due to the jerks at security ( They didn't work with us but I got two of them fired for harassing me)

GI just sent me to PT and figured that would fix everything because that is what they do for ladies who have what they feel I do.

Don't work for a guy. Kegles fix the bladder muscles but wreck the bowel muscles I need to keep my pants clean so..

In the end, we tried everything and I have accepted that this is life.

I have friends who I play Magic The Gathering with in person and they don't care that I have the issue and have to ask for a break.

Even my mom says that is the best thing that has come up for me.

All in all, if this is what I have to live with I count myself lucky, some people have it way worse.

 

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That's great that you are seeing improvement. Also fantastic that your mental health is better. I think almost everyone if not all of us on this forum understand the mental and emotional challenges. Despite these challenges we can all live a purposeful and fulfilling life. I wish you continued improvements in the coming days

 

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@ThatFLGuy continue to tell your story, share your feelings, good times and rough days if you feel comfortable. This is your life and you never know, what you are going through someone else may be going through the same thing and you may bring encouragement to someone to hang in there. Wish no one had a story to tell but we all do and you are just as important as the next guy. Your whole life doesn't consist of urinary incontinence, but your condition surely affects nearly every aspect of your life. So keep posting about your condition, treatment and whatever else is happening. We support you and hope the best for you.