A month after. Still frustrated.

[Archives1]

It has been a full month since I had my Ileostomy done. I have not liked it one bit. Truth is that there have been a huge number of complications already. The biggest is that it has a convexed stoma when sitting, leaning forward, but a bulging one when standing. This makes wafers almost impossible to stay on my skin. I also have had a bunch of leaks, and skin breaks down and now I am dealing with an ostomy specialist that is trying to push me to use bags that I will not except.

So after trying everything that I thought would work, and fix my issue, during my last appointment with my nurse and ostomy specialist I ended up being put into a Convatec convex bag as I did not have anything like that. Well even after telling my ostomy specialist that I would not be staying in Convatec bags she reached out and had them send me samples. I also got a call from Convatec to set up to get my supplies from one of their vendors. I have explained so many times to my specialist that I have done all the work to get Coloplast bags and that I like them, would not accept the Convatec stuff but even when I sent off the photos of my stoma yesterday after showering and changing my bag my nurse was insistent that I stick with the Convatec bags until I see her and my surgeon again. My nurse feels strongly that I will need corrective surgery to fix the convex because it changes so much. The outer ring of the stoma bag is too big for my convex but then when I stand my belly pushes out so I have to do a lot of extra stuff to keep the wafer in place. I actually cannot go from sitting down to standing or leaning forward without my hand on my stoma (Yes I have an ostomy belt on as well) without my wafer trying to pop off.

The big thing is that I use Coloplast bags and will not change from them as there are so much better for me.

I am getting more samples from Coloplast that should fix this issue so I hope I can continue to use their bags until my surgeon decides what to do about this.

 

[Archives1]

Grrrrrrr. Why won’t they just listen????

 

[Archives1]

@LeeC

My next appointment they are going to. The ostomy specialist actually sent a referral over to Covatec which really makes me mad because I was very clear that I was only using these bags until I get my samples from Coloplast and can have my vendor send out the other barriers.

It is like she is trying to force me to use these cheap crappy bags.

My thing is that before having this ostomy done I only used the best available diapers for my issues. (Still have to for urinary stuff)I am not accepting these bags that make my life hell. They are stupidly hard to empty at night (Like the produce bags and a grocery store) and have no filter so you have to get up and open them just to let the gas out of them.

Yea, they are more money but my insurance covers them so.

 

[Archives1]

@ThatFLGuy I’m sorry to hear your horrors continue; keep hanging in there. Good to hear from you.

 

[Archives1]

@snow

There is a lot more going on than just what I posted. I am lucky to have a family friend that also has an ileostomy that I can share the TMI stuff with as we are used to it. She feels like the doctor needs to fix with is going on and my ostomy specialist needs to be kicked off my case.